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Disorders of the Developing and Aging Brain: Autism and Alzheimer's on the Web Archive Collection 2014
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Contents List

Box | Folder Title
 
Series 1: Autism Spectrum Disorder Web Crawls, 2014 [series]:
 
Current Understanding, 2014 [subseries]:
 
The Autism Blog, 2014

The autism blog of Seattle Children's Hospital provides readers with an overview of Autism Spectrum Disorder-related developments and provides resources for patients and caregivers.

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National Autism Association, 2014

The National Autism Association, a parent-run 501c(3), is one of the leading autism advocacy and education groups in the nation. Their website includes information about autism writ large, treatment, and support, among other things.

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Autism Society's About Autism page, 2014

Another of the leading American non-profits that addresses autism, the Autism Society, has extensive information about autism now, including information on symptoms, diagnosis, causes, and facts and statistics.

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Autism Speaks' What is Autism? Page, 2014

Autism Speaks is one of the main US-based, autism non-profits.

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NIMH's A Parent's Guide to Autism Spectrum Disorder "What is Autism?" page, 2014

This publication, put out and maintained by the National Institute of Mental Health is an excellent guide to Autism Spectrum Disorder for parents.

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Are You On It?, 2014

This article from the popular New York Magazine discusses the expanding diagnoses of "Autism Spectrum Disorder" in long-form journalism.

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Caregiver Blogs, 2014 [subseries]:
 
Autism - Day by Day, 2014

Written by a single mother in the Los Angeles area, "Autism Day By Day" chronicles her life as the caregiver to her 15 year old autistic son, Nick. The blog is from the perspective of the mother of a pubescent child with autism and the challenges that come along with it.

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A Diary of a Mom, 2014

A Diary of a Mom author Jess is a Boston-area parent with two daughters, one neurotypical and one autistic. The blog chronicles her experiences raising both children with her husband and the special challenges presented by her younger daughter's autism.

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Go Team Kate, 2014

This blog, written by parents of Kate, an autistic girl in the UK, documents the experiences of both Kate's mother and father, and tells the detailed story of her diagnosis.

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Susan Senator's Blog, 2014

Susan Senator's autistic son is now in his early 20s, and her blog is from the perspective of the caregiver of a young adult with autism.

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Flappiness Is. . ., 2014

Written by a school media specialist with two children (one neurotypical, one with ASD), the author blogs about life with a young child on the spectrum. She also includes reviews of books and resources for parents and caregivers.

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Autism Daddy, 2014

Autism Daddy, an anonymous blogger, has a 10 year old son with severe, non-verbal autism. His blog provides the unique perspective of a primary caregiver father, and the caregiver to a child with "classic" autism. In addition to blogging about his son, he also writes about the effects of having a special needs child on marriage and other relationships.

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Patient Blogs, 2014 [subseries]:
 
Confessions of a Teenage Aspie, 2014

The self-described "Aspie" (person with Asperger's) blogger is in her late teens and recently started at college. Her blog provides a front-row seat to the challenges of being a teenager with Asperger's who is just starting to live independently.

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Autistic Hoya, 2014

This blog is written by a young, autistic woman about her experiences and advocacy. She is a self-advocate and deeply involved in the larger autism advocacy community.

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NatKat Official Blog, 2014

The NatKat blog is writing by a young woman with Autism Spectrum Disorder who began college in 2013. The blog chronicles her life as an autism patient and advocate, as well as college student and young adult.

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Dude, I'm an Aspie, 2014

Blogger Matt Friedman is an Asperger's advocate and cartoonist. He is a young man with Asperger's, and his blog is filled with reflections on ASD policy and experiences, and his own original drawings about the subject.

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Just Stimming, 2014

Written by a young adult with mild autism/Asperger's, this blog features essays related to many aspects of life with autism and clearly shows the perspective of someone with it.

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Research, 2014 [subseries]:
 
Autism Society Research page, 2014

The research page of the Autism Society's website aggregates some current research around two of the more promising areas in autism research: the Treatment Guided Research Initiative, and the Environmental Health Initiative.

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CDC's Autism Spectrum Research & Tracking page, 2014

The research on the CDC's Autism Spectrum Disorder Research and Tracking page is fed by a CDC surveillance monitoring system for relevant research tracking. It includes the most current research in the United States on ASD as of the crawl date.

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HHS Interagency Autism Coordinating Committee's Summary of Advances page, 2014

The Interagency Autism Coordinating committee is a group set up by the US Department of Health and Human Services. The report on this page indexes all of the recent research (since the committee's inception) and breaks it down into several categories for ease of use.

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Center for Autism Research, 2014

The Center for Autism Research (CAR), located at the Children's Hospital of Philadelphia, is a research institute dedicate to autism. Their page includes information about research being done both at CAR and around the country.

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Organization for Autism Research, 2014

The Organization for Autism Research, a non-profit founded in 2001, funds research and studies related to autism in America.

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Causes, 2014 [subseries]:
 
National Health Service (UK)'s Autism and Asperger's Syndrome: Causes page, 2014

This webpage from the UK's National Health Service lays out the potential causes of Autism Spectrum Disorder.

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NIEHS's Health and Education: Autism page, 2014

One of the potential causes of autism that is heavily researched involves environmental factors and environmental health. The National Institute of Environment and Health Services has significant information about the work being done on its website.

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National Autism Association's Causes page, 2014

There are many potential causes of autism, nearly all of which are highly controversial. The National Autism Association outlines some of the most common theories.

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U.S. Court of Federal Claims page on Autism and Vaccines, 2014

A theory that has been popular for well over a decade is that the MMR vaccine, given to young children, causes autism. After years of litigation, the United States government awarded a settlement to some people whose children may have been effected by the vaccine. This page documents the filings, facts, and other relevant information about the case.

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Treatment, 2014 [subseries]:
 
Autism Treatment Network, 2014

The Autism Treatment Network is hosted on the Autism Speaks website and includes information about treatment centers across the United States, as well as pertinent information about treatment methods and options.

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CDC's Learn the Signs. Act Early., 2014

The CDC sponsors a campaign called "Learn the Signs. Act Early." that is meant to educate parents and families about the early signs of autism. There is significant evidence that children who have early intervention fare better than those who do not, and getting an early diagnosis can be crucial.

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The 5 Scariest Autism "Treatments", 2014

This article, from Forbes magazine, outlines some of the more dangerous and bizarre alternative treatments that some use on those with autism.

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New York Times' Autism Health Guide, 2014

The New York Times health guide on autism includes news stories and articles about autism published in the Times or on its website, as well as information about treatment.

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Series 2: Alzheimer's Disease Web Crawls, 2014 [series]:
 
Current Understanding, 2014 [subseries]:
 
2013 Alzheimer's Disease Facts and Figures, 2014

Report from the Alzheimer's Association that recounts facts and figures about Alzheimer's as it existed in 2013.

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What is Alzheimer's?, 2014

Page from the Alzheimer's Association that describes Alzheimer's, its diagnosis and treatment, and how to identify it. Includes significant resources for sufferers and caregivers.

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What is Alzheimer's?, 2014

Web resource from the National Institutes of Health Senior Health Center that describes Alzheimer's, its causes and prevention, treatment and diagnosis, and other aspects of the disease.

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CDC Features: Alzheimer's, 2014

CDC website that discusses Alzheimer's and includes many resources from NIH and other government and non-governmental entities regarding caregiving, signs and symptoms, and other aspects of the disease.

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Caregiver Blogs, 2014 [subseries]:
 
The Alzheimer Spouse, 2014

Blogger Joan is the wife of Sid, an Alzheimer's sufferer. She began the blog in 2007 as an outlet for herself as his primary caregiver, and a place to discuss issues unique to being an Alzheimer's patient's spouse and caregiver. Joan maintains the blog with reflections on the effect of the disease on her life.

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Memories from my Life, 2014

Blogger Pat White's mother suffered from Alzheimer's for years before passing away in August 2011. Since then, White has been a caregiver advocate. The blog began in 2009 as a vehicle for White to express her thoughts on her mother's progress and the disease.

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Diagnosis: Alzheimer's, 2014

This blog was created by Rhonda Brantley for her husband, Bill Brantley. Bill was diagnosed in 2007 with early-onset Alzheimer's at 61 and died in 2012. Over time, the blog morphed from Bill to Rhonda posting about caregiver issues.

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Emily a la Blog, 2014

This section of a young woman's personal blog chronicles her mother's decline during her life with early-onset Alzheimer's. Her mother was diagnosed in her 50s and died in 2013.

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Living in the Shadow of Alzheimer's, 2014

Blogger Sheri has been writing about her experiences caring for her husband with Alzheimer's since 2010. Her posts are relatively short, and often involve poetry.

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A Blog Inspired by Mom's Brain, 2014

Written by Emily Caldwell, whose mother has Alzheimer's. Her mother was diagnosed in 2005 and lives in a nursing home today. She has been writing the blog since 2008, and it chronicles her mother's changing state and its impact on her as a primary (and then secondary) caregiver.

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Patient Blogs, 2014 [subseries]:
 
FTD/Dementia Support Blog, 2014

Blogger Howard was diagnosed with Frontotemporal Dementia nine years ago after being misdiagnosed with bipolar disorder. His blog, in existence since 2011, offers a unique voice in this area.

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Sharing My Life With Lewy Body Dementia, 2014

Written by anonymous blogger Silverfox, a retired Navy Master Chief Gunner's Mate with Lewy Body Dementia sufferer, this blog chronicles life with a lesser-known form of dementia. The decline is slow, and the blog focuses on his changing life with the disease.

[view online]
 
Watching the Lights Go Out, 2014

Blogger David Hilfiker is a retired physician living in the Washington, DC area who was diagnosed with mild cognitive impairment in 2012. His blog details his journey with the disease and how is memory loss effects his life now.

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Vicki's Voice: Sharing My Life With Frontotemporal Dementia, 2014

Blogger Vicki was diagnosed with Frontotemporal Dementia in 2009 and has maintained this blog since then. It chronicles her life with the disease, and her decline. Some posts are contributed by a close friend and sometimes-caregiver.

[view online]
 
Creating Memories/Dealing with Alzheimer's, 2014

Written by blogger Kris, a 54 year old woman with early onset Alzheimer's. The blog was started shortly after she was diagnosed in 2003.

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Research, 2014 [subseries]:
 
Alzheimer's Association Research Center, 2014

Website of the research branch of the Alzheimer's Association, which publishes and funds research related to the disease.

[view online]
 
News & Highlights, 2014

Press releases related to research conducted at the National Institute on Aging related to Alzheimer's.

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2011-2012 Alzheimer's Disease Progress Report, 2014

Report summarizing the progress made in the field of Alzheimer's research over the year and the next priorities.

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Healthy Brain Initiative Roadmap, 2014

Initial report from the Health Brain Initiative that lays out a roadmap for Alzheimer's research from 2013-2018.

[view online]
 
National Plan to Address Alzheimer's, 2014

Update to the National Plan to Address Alzheimer's (an intiative that came out of the National Alzheimer's Project Act in 2011), including research outcomes and action items.

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Causes, 2014 [subseries]:
 
About Alzheimer's Disease: Causes, 2014

Web resource from the National Institute on Aging that delves into the current understanding of Alzheimer's causes.

[view online]
 
The Search for Alzheimer's Causes and Risk Factors, 2014

Web resource summarizing the known causes and risk factors for Alzheimer's. The page contain several videos (embedded) explaining the implications of each.

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NY Times Health Guides: Alzheimer's, 2014

Health guide from the NY Times that includes information about what causes Alzheimer's Disease, with helpful graphics and commentary.

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Alzheimer's Myths, 2014

Webpage debunks several popular creation myths related to Alzheimer's, with citations to journal articles about each alleged cause. These include the aluminium, flu shot, aspartame, and teeth fillings theories, among others.

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Review Article: What Causes Alzheimer's Disease, 2014

In this article from Folia Neuropathologica, author Richard A. Armstrong looks at and reviews many of the origin theories of Alzheimer's in eight different categories. It is a nearly comprehensive review of theories that have been popular at various points in time.

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Treatment, 2014 [subseries]:
 
Alzheimer's Association: Latest Treatments, 2014

Resources on this page summarize the treatments currently available for Alzheimer's Disease patients, from memory loss to sleep changes.

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Alzheimer's Disease Education and Referral Center: Treatment, 2014

This page from ADEAR (an NIH component) delves into various treatment and medication options, and includes numerous resources and fact sheets for referral.

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Help with Alzheimer's, 2014

Page from alzheimers.gov about how to find and select an Alzheimer's caregiver or caregiver team. Includes many resources regarding eldercare in America.

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How to Plan and Pay Ahead, 2014

Page from alzheimers.gov that deals with the financial and legal aspects of Alzheimer's care and treatment.

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Alzheimer's Disease and Caregiving, 2014

Page from the Family Caregiver Alliance, a non-profit organization that provides information and support for caregivers to people with all varieties of illnesses. Includes information and guidelines about what might be appropriate care in every stage of the disease.

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Prevention, 2014 [subseries]:
 
Dietary Guidelines for Alzheimer's Prevention, 2014

Web resource from the Physician's Committee for Responsible Medicine (a DC-based non-profit that advocates for the ethical practice of medicine) that gives recommendations for a diet designed to minimize the risk of Alzheimer's Disease.

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Preventing Alzheimer's Disease, 2014

Pamphlet published by the National Institute on Aging about current theories and methods to minimize Alzheimer's risk.

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Alzheimer's Prevention Initiative, 2014

An online registry that promotes and publicizes Alzheimer's prevention trials at various medical institutions. Also includes some resources.

[view online]