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National Library of Medicine

Finding Aid to the Acadia Institute Ethnographic and Medical Sociology Research Collection, 1966-1987

Megan O'Hern
Processed by Megan O'Hern
Encoded by Megan O'Hern
Processing completed April 2019


Summary Information
Title: Acadia Institute Ethnographic and Medical Sociology Research Collection
Creator: Acadia Institute
Dates: 1966-1987
Extent: 13.95 linear feet (12 boxes)
Abstract:
Interview transcripts and memos, field notes, correspondence, subject files, reprints, and newspaper clippings documenting multiple ethnographical medical sociology research projects conducted by Judith Swazey and Renée Fox, working independently and jointly under the auspices of the Acadia Institute which primarily focused on social, ethical, and policy issues in biomedical research and healthcare.

Call number: MS C 632
Language: Collection materials primarily in English
Location: Materials stored onsite. History of Medicine Division. National Library of Medicine

Access Restrictions:

Collection contains restricted material. Portions of the collection are restricted according to HMD's Access to Health Information of Individuals policy. Contact the Reference Staff for information regarding access. For access to the policy and application form, please visit https://www.nlm.nih.gov/hmd/manuscripts/phi.pdf.

Copyright and Re-use Information

Donor's copyrights were transferred to the public domain. Archival collections often contain mixed copyrights; while NLM is the owner of the physical items, permission to examine collection materials is not an authorization to publish. These materials are made available for use in research, teaching, and private study. It is the user's responsibility to research and understand any applicable copyright and re-publication rights not allowed by fair use. NLM does not grant permissions to publish.

Privacy Information

Archives and manuscript collections may contain materials with sensitive or confidential information that is protected under federal or state right to privacy laws and regulations. Researchers are advised that the disclosure of certain information pertaining to identifiable living individuals represented in any collection without the consent of those individuals may have legal ramifications for which the National Library of Medicine assumes no responsibility.

Preferred Citation:

Acadia Institute. Acadia Institute Ethnographic and Medical Sociology Research Collection. 1966-1987. Located in: Archives and Modern Manuscripts Collection, History of Medicine Division, National Library of Medicine, Bethesda, MD; MS C 632.

Processing Information

The Acadia Institute Ethnographic and Medical Sociology Research Collection was rehoused from original containers into archival folders and boxes. In the course of final processing several categories of material were weeded from the original accession and discarded by the processing archivist: publication drafts and related materials and duplicate items.

Provenance:

Gift, Judith P. Swazey, 11/4/1992, Acc. #641b.


101085140Finding Aid to the Acadia Institute Ethnographic and Medical Sociology Research Collection, 1966-1987Archives and Modern Manuscripts Program, History of Medicine Division1.0April 2019Machine-readable finding aid encoded by Megan O'HernFinding aid is written in English

National Library of Medicine

Finding Aid to the Acadia Institute Ethnographic and Medical Sociology Research Collection, 1966-1987

Megan O'Hern
Processed by Megan O'Hern
Encoded by Megan O'Hern
Processing completed April 2019

Descriptive Summary

Acadia InstituteAcadia Institute Ethnographic and Medical Sociology Research Collection Dates: 1966-198713.95 linear feet (12 boxes)MS C 632 Materials stored onsite. History of Medicine Division. National Library of MedicineCollection materials primarily in EnglishAbstract:Interview transcripts and memos, field notes, correspondence, subject files, reprints, and newspaper clippings documenting multiple ethnographical medical sociology research projects conducted by Judith Swazey and Renée Fox, working independently and jointly under the auspices of the Acadia Institute which primarily focused on social, ethical, and policy issues in biomedical research and healthcare.Provenance:

Gift, Judith P. Swazey, 11/4/1992, Acc. #641b.

Access Restrictions:

Collection contains restricted material. Portions of the collection are restricted according to HMD's Access to Health Information of Individuals policy. Contact the Reference Staff for information regarding access. For access to the policy and application form, please visit https://www.nlm.nih.gov/hmd/manuscripts/phi.pdf.

Copyright and Re-use Information

Donor's copyrights were transferred to the public domain. Archival collections often contain mixed copyrights; while NLM is the owner of the physical items, permission to examine collection materials is not an authorization to publish. These materials are made available for use in research, teaching, and private study. It is the user's responsibility to research and understand any applicable copyright and re-publication rights not allowed by fair use. NLM does not grant permissions to publish.

Privacy Information

Archives and manuscript collections may contain materials with sensitive or confidential information that is protected under federal or state right to privacy laws and regulations. Researchers are advised that the disclosure of certain information pertaining to identifiable living individuals represented in any collection without the consent of those individuals may have legal ramifications for which the National Library of Medicine assumes no responsibility.

Preferred Citation:

Acadia Institute. Acadia Institute Ethnographic and Medical Sociology Research Collection. 1966-1987. Located in: Archives and Modern Manuscripts Collection, History of Medicine Division, National Library of Medicine, Bethesda, MD; MS C 632.

Processing Information

The Acadia Institute Ethnographic and Medical Sociology Research Collection was rehoused from original containers into archival folders and boxes. In the course of final processing several categories of material were weeded from the original accession and discarded by the processing archivist: publication drafts and related materials and duplicate items.

Biographical Note

The Acadia Institute, founded by Judith Swazey in Bar Harbor, Maine in 1984, was an independent, non-profit research and advocacy organization focused on the intersection between medicine, science, and society and policy issues in biomedical research and healthcare. The Acadia Institute conducted grant-funded research projects on a variety of subjects including the artificial heart and science graduate education. The Institute also provided consulting services in areas such as health care services, provider relationships, policy development, and program evaluation. Lastly, the Institute developed educational programs and conferences on medical sociology and bioethics for both professional and lay audiences.

Judith P. Swazey is a historian of science and medicine and of the social, ethical, legal, and policy aspects of contemporary medical research and practice. She earned her Ph.D. in history at Harvard University and went on to teach at Boston University in the 1970s. Swazey later served as the Executive Director of Medicine in the Public Interest, Inc. and briefly served as president of the College of the Atlantic. She founded the Acadia Institute, a non-profit research and advocacy organization based in Maine. Among other professional activities, Swazey was an Adjunct Professor at Boston University's Schools of Medicine and Public Health and is an elected member of the National Academy of Medicine.

Renée C. Fox is a sociologist whose research focuses on medicine, medical research, and medical ethics. Fox earned her Ph.D. in Sociology from Radcliffe College in 1954. She was a member of the Columbia University Bureau of Applied Social Research, taught at Barnard College for twelve years, and served as a Visiting Lecturer in the Department of Sociology at Harvard. In 1969, Fox joined the sociology faculty of the University of Pennsylvania where she served as the Annenberg Professor of the Social Sciences.


Interview transcripts and memos, field notes, correspondence, subject files, reprints, and newspaper clippings documenting multiple ethnographical medical sociology research projects conducted by Judith Swazey and Renée Fox, working independently and jointly under the auspices of the Acadia Institute which primarily focused on social, ethical, and policy issues in biomedical research and healthcare.

Series 1 contains research files created by Drs. Swazey and Fox over the course of various research projects. The Ethnography of Organ Transplantation and Artificial Organs subseries makes up the bulk of Series 1 and is comprised of ethnographic and related primary source materials collected by Fox and Swazey on the development and clinical introduction of organ transplantation (renal, cardiac, and liver) and artificial vital organs (dialysis and artificial hearts) from 1951-1987. These materials include interviews with physicians, nurses, and technicians as well as field notes of Swazey and Fox's observations while on rounds with physcians at major transplantation and dialysis centers in the United States. The interviews and field notes address a range of topics, including the development of transplant and dialysis therapies in practice, the emotional trauma of these therapies, patient selection, support systems, patients' quality-of-life, and end-of-life choices. Series 1 also includes records of Swazey and Fox's cross-cultural studies (e.g. the People's Republic of China and Majuro, Marshall Islands). Subseries 1 contains one file of interviews and field notes collected by Fox tracking the emergence of clinical research in Belgium post WWII with a focus on the pivotal role that American academic medical centers played in training European clinical investigators.

Also of particular interest is the Series 1 Chlorpromazine and Psychopharmacology subseries, which is comprised of primary source materials that Swazey collected in France and the U.S. relating to the development and introduction of chlorpromazine, the first "major tranquilizer or neuroleptic with anti-schizophrenic efficacy." Series 1, Biomedical Research Innovation Opportunities subseries contains interviews that Swazey and Stanley J. Reiser conducted between 1966-1967 with leading figures in biomedical research and health care, such as NIH Director James Shannon. Swazey and Reiser carried out this research for the Harvard University Program on Technology and Society and focused on what the informants saw as major research and therapeutic innovation avenues in the next several decades and the sorts of social, ethical, and policy issues those opportunities might generate.

Series 2 is comprised of field notes, correspondence, and primary source materials from Swazey and Fox's medical sociology research and teaching journeys to the People's Republic of China in 1981 (Fox), 1981 (Fox and Swazey), and 1985 (Fox). These materials, in part, focus on China's shift into advanced medical technology and tertiary care, cancer research, and the reconstitution of the medical and nursing professions after the Cultural Revolution.

Series 3 documents undergraduate and graduate courses on medical sociology and ethics that Swazey taught. The bulk of the series contains the syllabus, outlines, and weekly readings for a course on personhood titled "The Meaning of Person" which Swazey taught in 1984.

Index Terms

These terms are indexed in the National Library of Medicine's online catalog LocatorPlus. Researchers wishing to find related materials should search the catalog using these terms.

    MeSH Subjects

    • Amygdalin
    • Anthropology, Cultural
    • Artificial Organs
    • Attention Deficit Disorder with Hyperactivity
    • Bioethical Issues
    • Chlorpromazine
    • Confidentiality
    • Ethics, Medical
    • Heart, Artificial
    • History of Medicine
    • Human Experimentation
    • Kidneys, Artificial
    • Medical Records
    • Personhood
    • Primary Health Care
    • Privacy
    • Psychopharmacology
    • Quackery
    • Renal Dialysis
    • Sociology, Medical
    • Transplants
    Personal Names

    • Fox, Renée C. (Renée Claire), 1928-
    • Reiser, Stanley Joel
    • Swazey, Judith P.
    Corporate Names

    • Harvard University. Program on Science, Technology, and Public Policy
    Geographic Names

    • China
    • Massachusetts

    Series Descriptions

    Series 1: Ethnographic Medical Sociology Research, 1966-1987 Ethnography of Organ Transplantation and Artificial Organs Transplant and Dialysis Field Observations and Interviews111 Seattle Patient Processing Committee [interviews with hospital staff], 1960-1970Access Restrictions:

    [RESTRICTED PHI POLICY]

    11 Transplants - Persons to Interview, 1966112 Interviews [with physicians, nurses, and social workers], 1968Access Restrictions:

    [RESTRICTED PHI POLICY]

    113 Boston and Organ Transplants [contains interview with Dr. Dwight Harken], 1968-1969Access Restrictions:

    [RESTRICTED PHI POLICY]

    114 Massachusetts General Hospital - Interviews [with physicians, nurses, and social workers], 1968-1969Access Restrictions:

    [RESTRICTED PHI POLICY]

    115 Organ Transplants [interviews with researchers and physicians], 1968-1969Access Restrictions:

    [RESTRICTED PHI POLICY]

    116 Peter Bent Brigham Hospital [interviews with hospital staff], 1968-1969Access Restrictions:

    [RESTRICTED PHI POLICY]

    12 Peter Bent Brigham Hospital - Renal Unit Documents, 1968-1969117-8 Massachusetts General Hospital - Kidney Transplant Rounds, 1969Access Restrictions:

    [RESTRICTED PHI POLICY]

    119 Massachusetts General Hospital Kidney Donors, 1969Access Restrictions:

    [RESTRICTED PHI POLICY]

    1110 Massachusetts General Hospital Kidney Recipients, 1969-1970Access Restrictions:

    [RESTRICTED PHI POLICY]

    1111 Interview with Dr. Christiaan Barnard (Starzl), 1970Access Restrictions:

    [RESTRICTED PHI POLICY]

    1112 Denver Interviews [with physicians and patients], 1970Access Restrictions:

    [RESTRICTED PHI POLICY]

    1113 Montreal Heart Institute - Field Notes, 1970Access Restrictions:

    [RESTRICTED PHI POLICY]

    13 Montreal Heart Institute - Related Documents, 1959-19701114 Seattle Kidney Center [interviews with physicians and field notes], 1970-1971Access Restrictions:

    [RESTRICTED PHI POLICY]

    1115 Children's Hospital Medical Center, 1971Access Restrictions:

    [RESTRICTED PHI POLICY]

    1116 Belgium [interviews with physicians and field notes], 1977Access Restrictions:

    [RESTRICTED PHI POLICY]

    1117 Case of [Patient Name] - Field Notes, 1980Access Restrictions:

    [RESTRICTED PHI POLICY]

    1118 Downstate Medical Center (Fox) [interviews with nurses and field notes], 1980Access Restrictions:

    [RESTRICTED PHI POLICY]

    1119 Massachusetts General Hospital, Cardiac Transplantation [interview with Dr. Paul Russell] [audiocassette], 1980Access Restrictions:

    [RESTRICTED PHI POLICY]

    1120 Dialysis - Majuro, Marshall Islands, 1981Access Restrictions:

    [RESTRICTED PHI POLICY]

    1121 Stanford Cardiac Transplant - Field Notes, 1981Access Restrictions:

    [RESTRICTED PHI POLICY]

    14 Stanford Selection Criteria - Heart and Heart-Lung, 198615 Doris K - Case Study [audiocassette], 1981-19831122 Cyclosporin A - Interview with Dr. Paul Russell, 1982Access Restrictions:

    [RESTRICTED PHI POLICY]

    1123 Transplantation [interview with Dr. Thomas Starzl and field notes], 1982, 1987Access Restrictions:

    [RESTRICTED PHI POLICY]

    1124-25 Boston Center for Liver Transplantation, 1985Access Restrictions:

    [RESTRICTED PHI POLICY]

    Research Notes16 Organ Transplants - Working Documents, 1968-196917 JFK Symposium, 196918 Memos and Outlines, 196919 Reading Notes, 1969110 "The Transplanters", 1969-1970111 Artificial Gut Paper (Swazey and Scribner), 1976112 Dialysis Shunt Paper (Swazey and Scribner), 1976113 Colorado Visit, 1976-1977114 University of Washington Funding Problems, 1981115 NIH Consensus Development Conference on Liver Transplantation (Fox), 1983 Lectures and Presentations116 Honolulu Visit (Fox), 1976117 Kidney International Forum, 1980118 Anatomical Gifts Lecture - American Association of Tissue Banks Annual Meeting (Swazey), 1980 May119 Renal Disease Lecture (Swazey), 1981 May120 Lecture Notes on Transplantation and Dialysis (Swazey), undated Correspondence121 Houston Trip Correspondence, 1969-1970122-23 Transplant Research Correspondence, 1969-1971, 1986 Subject Files124 Artificial Organs, 1970125 Barnard, 1968-1969126-27 Bone Marrow Transplants, 1967-1983128 Cadaver Donation, 1970-1981129 Cardiac Transplantation, 1970-198221 Cardiac Transplantation [cont'd], 1970-198222 Center versus Home Dialysis, 1978-198123 Christopherson Reprints, 1968-197124 Cost, 1968-196925-6 Cyclosporin A, 1981-1982, undated27 Definition of Death, 1968-197028-10 Dialysis and Transplants, 1970-1985211 Dialysis & Transplants - Medical Complications, 1970-1981212 Dialysis and Schizophrenia [audiocassette], 1975-198131 Donor Shortage, 196932 Ethical Issues in Dialysis and Transplant, 198133 Ethics, 1968-196934 Fiction, 1969-197035-6 Financial Costs of Dialysis and Transplants, 1972-198137 General Articles, 197038 Grondin and Lillehei, 1968-196939 Heart Disease, 1968-1969310 Heart Donors, 1970311-14 Heart Recipients, 1968-197041 Heart Transplants, 1969-197042 Heart Transplant "Box Scores", 1968-196943 Heart Transplants, Critiques and Caveats, 1968-197044 Heart Transplants, Experiment vs. Therapy, 1968-196945 Heart Transplants, Experimental Work, 1968-196946 Heart Transplants, Graphs, 197047 Heart Transplants, Moratorium Debate, 196948 Heart Transplants, Professional Inquiries, 196849 Heart Transplants, Spin-offs, 1969410-12 Hemodialysis, 1962-1974413 Herron's Report on Kidney Disease, 1969414 Heterografts, 1969-1970415-16 Human Experimentation, 1969-1971417 Kidney and Renal Disease, 1967-1969418 Kidney Recipients and Donors, 1970419-21 Kidney Transplants, 1969-197051 Larger Implications, 197052 Legal (Donation), 197053 Legal and Government Policy, 197054 Liver Transplants, 1966-197055 Liver Transplant and Organ Procurement, 1983-198556 Liver Transplantation and Cyclosporin, 1977-198457 Living Donation [audiocassette], 1970-198158-9 Lung, Knee, Teeth, Bone Marrow, Pancreas, and Eye, 1968-1969510 Massachusetts Organ Donation, Legal Aspects, 1967-1968511 Medical Talks, 1970512-13 Miscellaneous News Clippings and Reprints, 1968-1986514 Miscellaneous Reprints [from Dr. Lillehei], 1957-1968515 Mitral Stenosis and Clinical Moratorium, circa 1969516 Moratorium Debate, 1968-1970517 Organ Procurement, 1986-1987518 Organ Registries, 1969519 Organ Storage, 1968-1969520 Other Transplanters, 1969-1970521 Other Transplants, 1970522 Pancreatic Transplants, 1980-1981523 Patient Selection, 1968, undated61 Protocol Retrospective Study of Potential Kidney Donors, 1976-197762 Psychological Factors regarding Transplants, 1969-197063 Psychosocial Aspects of Transplants and Dialysis, 1977-198264 Public Interest, 197065 Rejection, Tissue Typing, and Immunosuppression, 1968-197066 Routine Harvesting of Organs, undated67 Shumway and Kantrowitz, 1969-197068 Sickle Cell Anemia, 1974-198169 Starzl, Thomas E., 1969610 Supply and Demand, 1969-1970611 Supply and Demand (Donor Shortage), 1970612 Supply and Demand (Registries), 1970613 Supply and Demand (Storage), 1970614 Transplant Issues, 1986-1987615 Transplant Rejections, Typing, and Matching, 1968-1970616-17 Transplantation, 1968-1969, 1986-1987618 Transplantation, American Council on, 1986-1987619 Transplants, Government Policy, 1969620 Transplants, Lay Interests, 1968-1969621 Transplants, Legal, 1969622 Transplants, Public Views and Criticism, 1968-1969 Chlorpromazine and Psychopharmacology623-26 Psychosurgery, 1966-197871-2 Prisons, 1966-197873 Thought and Behavior Control, 1967-196874 Correspondence, 1971-197475 Behavioral Modification - Correspondence and Memos, 1971-197876-7 Papers, Correspondence, Press Clippings, and Reprints, 1971-197578 Drugs/Behavior Control Conference, 1972 May 2079 Copies from DiMasco's File, 1972-1974710 Boston Case, 1973-1976711-12 Research Proposal to NIMH, Psychosurgery Study, 1974713 Total Institutions, 1974714 Behavior Modification Drugs - Reprints, 1974-1975715 Autonomy Papers, 1975716Chlorpromazine in Psychiatry - Promotion and Reviews, 1976717 XYY Syndrome, 1976-1978718 Hyperactivity Drugs [Jim Bosco Papers], 1978-1979719 "Psychopharmacology Research and Social Controls: Lessons from the Boston Children's Drug Medication Study," Presentation at AERA Symposium, 1980720 Hastings Center: Endorphins, 1980721 Illustrations [photographs] [negatives], undated Laetrile and Quackery722 Quacks Lecture, 1976723 PC Seminar 9/15, 197781 Lay Articles, 1977-197882 Freedom of Choice Regulations, 197883 Reprints, 1979-198284 State to Consumer - 1980 Class Notes, 198085 Press Clippings, 1980 Human Experimentation86-12 Press Clippings, Reprints, and Reference Materials, 1973-198191 Society for Health and Human Values, 197992 Ethical Problems of Field Work, 198093 "Educational Needs for Participants in Research with Human Subjects" [Paper for the Office for Protection from Research Risks], 1980 Primary Care Healthcare94 Dan Clouser Papers, 197395 Ethics - Primary Care Book Prospectus, 197896 Professional Self-Regulation, 198197-8 Press Clippings and Reprints, 1973-198199 Backlash Articles, 1974-1975910 Behavior Change Issues, 1976-1979 Patient Record Access911 Proposal for Patient Record Access Study, 1974-1976912 Press Clippings and Reprints, 1979-1980 Biomedical Research Innovation Opportunities913-14 Persons Interviewed by Biomedical Group, 1966915 Forecasting - Transplantation and Other Biomedical Fields, 1968-1969 Series 2: Medical Sociology Research and Teaching Trip to the People's Republic of China, 1980-1984916 American Association for the Advancement of Science (AAAS) - China, 1980-1981917 China Trip - General File, 1981918 Research Trip to the People's Republic of China - Field Notes, 1981919 Notes and Itineraries, 1981-1983920 Lectures, 1981921 Emmanuel College - China Lecture, 1981 Nov 11922 Pre-trip Correspondence, 1981-1982923-24 Post-Trip Correspondence, 1981-1984925 Nursing - Grandmother Nurse and Nurse Doctor, 1982926 "Critical Care at Tianjin's First Central Hospital and the Fourth Modernization" [article], 1982927 Wang and Ming Visit, 1982928 Hastings Center, 1982929 Address List, 1982930 "Medical Morality is Not Bioethics" [article], 1984931-32Why?, Why?, Why?: Teaching and Learning Medical Sociology in the People's Republic of China [manuscript], 1984101-3 Reprints, Clippings, and Reference Materials, 1974-1984104 China Book and Articles, 1981105-6 Miscellaneous Documents [Correspondence, News Clippings, and Reprints], 1984 Series 3: Medical Sociology and Ethics Teaching Materials, 1980-1984107 Privacy and Confidentiality Teaching Materials, 1980108 Truth-Telling Class Materials, 1981 Personhood Course109 Personhood Course (Spring Semester), 19841010 Session 1: Introduction [Personhood Course], 19841011 Session 3: Personhood in American Social History [Personhood Course], 19841012 Session 4: Cross-Cultural Perspectives [Personhood Course], 19841013 Session 5: Abortion and Death [Personhood Course], 19841014 Session 6: Genetic Engineering [Personhood Course], 19841015 Session 7: Beginnings of Life [Personhood Course], 19841016 Session 8: Behavior Change and Control [Personhood Course], 19841017 Session 9: Social Justice and Classes of Persons [Personhood Course], 19841018 Session 10: Retrospective [Personhood Course], 19841019 Personhood Course Miscellaneous, 1984

    Collection Scope and Content Note

    Interview transcripts and memos, field notes, correspondence, subject files, reprints, and newspaper clippings documenting multiple ethnographical medical sociology research projects conducted by Judith Swazey and Renée Fox, working independently and jointly under the auspices of the Acadia Institute which primarily focused on social, ethical, and policy issues in biomedical research and healthcare.

    Series 1 contains research files created by Drs. Swazey and Fox over the course of various research projects. The Ethnography of Organ Transplantation and Artificial Organs subseries makes up the bulk of Series 1 and is comprised of ethnographic and related primary source materials collected by Fox and Swazey on the development and clinical introduction of organ transplantation (renal, cardiac, and liver) and artificial vital organs (dialysis and artificial hearts) from 1951-1987. These materials include interviews with physicians, nurses, and technicians as well as field notes of Swazey and Fox's observations while on rounds with physcians at major transplantation and dialysis centers in the United States. The interviews and field notes address a range of topics, including the development of transplant and dialysis therapies in practice, the emotional trauma of these therapies, patient selection, support systems, patients' quality-of-life, and end-of-life choices. Series 1 also includes records of Swazey and Fox's cross-cultural studies (e.g. the People's Republic of China and Majuro, Marshall Islands). Subseries 1 contains one file of interviews and field notes collected by Fox tracking the emergence of clinical research in Belgium post WWII with a focus on the pivotal role that American academic medical centers played in training European clinical investigators.

    Also of particular interest is the Series 1 Chlorpromazine and Psychopharmacology subseries, which is comprised of primary source materials that Swazey collected in France and the U.S. relating to the development and introduction of chlorpromazine, the first "major tranquilizer or neuroleptic with anti-schizophrenic efficacy." Series 1, Biomedical Research Innovation Opportunities subseries contains interviews that Swazey and Stanley J. Reiser conducted between 1966-1967 with leading figures in biomedical research and health care, such as NIH Director James Shannon. Swazey and Reiser carried out this research for the Harvard University Program on Technology and Society and focused on what the informants saw as major research and therapeutic innovation avenues in the next several decades and the sorts of social, ethical, and policy issues those opportunities might generate.

    Series 2 is comprised of field notes, correspondence, and primary source materials from Swazey and Fox's medical sociology research and teaching journeys to the People's Republic of China in 1981 (Fox), 1981 (Fox and Swazey), and 1985 (Fox). These materials, in part, focus on China's shift into advanced medical technology and tertiary care, cancer research, and the reconstitution of the medical and nursing professions after the Cultural Revolution.

    Series 3 documents undergraduate and graduate courses on medical sociology and ethics that Swazey taught. The bulk of the series contains the syllabus, outlines, and weekly readings for a course on personhood titled "The Meaning of Person" which Swazey taught in 1984.

    Contents List
    Box | Folder Title
     
    Series 1: Ethnographic Medical Sociology Research, 1966-1987 [series]:
     
    Ethnography of Organ Transplantation and Artificial Organs [subseries]:
     
    Transplant and Dialysis Field Observations and Interviews [subseries]:
    11 1
    Seattle Patient Processing Committee [interviews with hospital staff], 1960-1970 [RESTRICTED PHI POLICY]
    1 1
    Transplants - Persons to Interview, 1966
    11 2
    Interviews [with physicians, nurses, and social workers], 1968 [RESTRICTED PHI POLICY]
    11 3
    Boston and Organ Transplants [contains interview with Dr. Dwight Harken], 1968-1969 [RESTRICTED PHI POLICY]
    11 4
    Massachusetts General Hospital - Interviews [with physicians, nurses, and social workers], 1968-1969 [RESTRICTED PHI POLICY]
    11 5
    Organ Transplants [interviews with researchers and physicians], 1968-1969 [RESTRICTED PHI POLICY]
    11 6
    Peter Bent Brigham Hospital [interviews with hospital staff], 1968-1969 [RESTRICTED PHI POLICY]
    1 2
    Peter Bent Brigham Hospital - Renal Unit Documents, 1968-1969
    11 7-8
    Massachusetts General Hospital - Kidney Transplant Rounds, 1969 [RESTRICTED PHI POLICY]
    11 9
    Massachusetts General Hospital Kidney Donors, 1969 [RESTRICTED PHI POLICY]
    11 10
    Massachusetts General Hospital Kidney Recipients, 1969-1970 [RESTRICTED PHI POLICY]
    11 11
    Interview with Dr. Christiaan Barnard (Starzl), 1970 [RESTRICTED PHI POLICY]
    11 12
    Denver Interviews [with physicians and patients], 1970 [RESTRICTED PHI POLICY]
    11 13
    Montreal Heart Institute - Field Notes, 1970 [RESTRICTED PHI POLICY]
    1 3
    Montreal Heart Institute - Related Documents, 1959-1970
    11 14
    Seattle Kidney Center [interviews with physicians and field notes], 1970-1971 [RESTRICTED PHI POLICY]
    11 15
    Children's Hospital Medical Center, 1971 [RESTRICTED PHI POLICY]
    11 16
    Belgium [interviews with physicians and field notes], 1977 [RESTRICTED PHI POLICY]
    11 17
    Case of [Patient Name] - Field Notes, 1980 [RESTRICTED PHI POLICY]
    11 18
    Downstate Medical Center (Fox) [interviews with nurses and field notes], 1980 [RESTRICTED PHI POLICY]
    11 19
    Massachusetts General Hospital, Cardiac Transplantation [interview with Dr. Paul Russell] [audiocassette], 1980 [RESTRICTED PHI POLICY]
    11 20
    Dialysis - Majuro, Marshall Islands, 1981 [RESTRICTED PHI POLICY]
    11 21
    Stanford Cardiac Transplant - Field Notes, 1981 [RESTRICTED PHI POLICY]
    1 4
    Stanford Selection Criteria - Heart and Heart-Lung, 1986
    1 5
    Doris K - Case Study [audiocassette], 1981-1983
    11 22
    Cyclosporin A - Interview with Dr. Paul Russell, 1982 [RESTRICTED PHI POLICY]
    11 23
    Transplantation [interview with Dr. Thomas Starzl and field notes], 1982, 1987 [RESTRICTED PHI POLICY]
    11 24-25
    Boston Center for Liver Transplantation, 1985 [RESTRICTED PHI POLICY]
     
    Research Notes [subseries]:
    1 6
    Organ Transplants - Working Documents, 1968-1969
    1 7
    JFK Symposium, 1969
    1 8
    Memos and Outlines, 1969
    1 9
    Reading Notes, 1969
    1 10
    "The Transplanters", 1969-1970
    1 11
    Artificial Gut Paper (Swazey and Scribner), 1976
    1 12
    Dialysis Shunt Paper (Swazey and Scribner), 1976
    1 13
    Colorado Visit, 1976-1977
    1 14
    University of Washington Funding Problems, 1981
    1 15
    NIH Consensus Development Conference on Liver Transplantation (Fox), 1983
     
    Lectures and Presentations [subseries]:
    1 16
    Honolulu Visit (Fox), 1976
    1 17
    Kidney International Forum, 1980
    1 18
    Anatomical Gifts Lecture - American Association of Tissue Banks Annual Meeting (Swazey), 1980 May
    1 19
    Renal Disease Lecture (Swazey), 1981 May
    1 20
    Lecture Notes on Transplantation and Dialysis (Swazey), undated
     
    Correspondence [subseries]:
    1 21
    Houston Trip Correspondence, 1969-1970
    1 22-23
    Transplant Research Correspondence, 1969-1971, 1986
     
    Subject Files [subseries]:
    1 24
    Artificial Organs, 1970
    1 25
    Barnard, 1968-1969
    1 26-27
    Bone Marrow Transplants, 1967-1983
    1 28
    Cadaver Donation, 1970-1981
    1 29
    Cardiac Transplantation, 1970-1982
    2 1
    Cardiac Transplantation [cont'd], 1970-1982
    2 2
    Center versus Home Dialysis, 1978-1981
    2 3
    Christopherson Reprints, 1968-1971
    2 4
    Cost, 1968-1969
    2 5-6
    Cyclosporin A, 1981-1982, undated
    2 7
    Definition of Death, 1968-1970
    2 8-10
    Dialysis and Transplants, 1970-1985
    2 11
    Dialysis & Transplants - Medical Complications, 1970-1981
    2 12
    Dialysis and Schizophrenia [audiocassette], 1975-1981
    3 1
    Donor Shortage, 1969
    3 2
    Ethical Issues in Dialysis and Transplant, 1981
    3 3
    Ethics, 1968-1969
    3 4
    Fiction, 1969-1970
    3 5-6
    Financial Costs of Dialysis and Transplants, 1972-1981
    3 7
    General Articles, 1970
    3 8
    Grondin and Lillehei, 1968-1969
    3 9
    Heart Disease, 1968-1969
    3 10
    Heart Donors, 1970
    3 11-14
    Heart Recipients, 1968-1970
    4 1
    Heart Transplants, 1969-1970
    4 2
    Heart Transplant "Box Scores", 1968-1969
    4 3
    Heart Transplants, Critiques and Caveats, 1968-1970
    4 4
    Heart Transplants, Experiment vs. Therapy, 1968-1969
    4 5
    Heart Transplants, Experimental Work, 1968-1969
    4 6
    Heart Transplants, Graphs, 1970
    4 7
    Heart Transplants, Moratorium Debate, 1969
    4 8
    Heart Transplants, Professional Inquiries, 1968
    4 9
    Heart Transplants, Spin-offs, 1969
    4 10-12
    Hemodialysis, 1962-1974
    4 13
    Herron's Report on Kidney Disease, 1969
    4 14
    Heterografts, 1969-1970
    4 15-16
    Human Experimentation, 1969-1971
    4 17
    Kidney and Renal Disease, 1967-1969
    4 18
    Kidney Recipients and Donors, 1970
    4 19-21
    Kidney Transplants, 1969-1970
    5 1
    Larger Implications, 1970
    5 2
    Legal (Donation), 1970
    5 3
    Legal and Government Policy, 1970
    5 4
    Liver Transplants, 1966-1970
    5 5
    Liver Transplant and Organ Procurement, 1983-1985
    5 6
    Liver Transplantation and Cyclosporin, 1977-1984
    5 7
    Living Donation [audiocassette], 1970-1981
    5 8-9
    Lung, Knee, Teeth, Bone Marrow, Pancreas, and Eye, 1968-1969
    5 10
    Massachusetts Organ Donation, Legal Aspects, 1967-1968
    5 11
    Medical Talks, 1970
    5 12-13
    Miscellaneous News Clippings and Reprints, 1968-1986
    5 14
    Miscellaneous Reprints [from Dr. Lillehei], 1957-1968
    5 15
    Mitral Stenosis and Clinical Moratorium, circa 1969
    5 16
    Moratorium Debate, 1968-1970
    5 17
    Organ Procurement, 1986-1987
    5 18
    Organ Registries, 1969
    5 19
    Organ Storage, 1968-1969
    5 20
    Other Transplanters, 1969-1970
    5 21
    Other Transplants, 1970
    5 22
    Pancreatic Transplants, 1980-1981
    5 23
    Patient Selection, 1968, undated
    6 1
    Protocol Retrospective Study of Potential Kidney Donors, 1976-1977
    6 2
    Psychological Factors regarding Transplants, 1969-1970
    6 3
    Psychosocial Aspects of Transplants and Dialysis, 1977-1982
    6 4
    Public Interest, 1970
    6 5
    Rejection, Tissue Typing, and Immunosuppression, 1968-1970
    6 6
    Routine Harvesting of Organs, undated
    6 7
    Shumway and Kantrowitz, 1969-1970
    6 8
    Sickle Cell Anemia, 1974-1981
    6 9
    Starzl, Thomas E., 1969
    6 10
    Supply and Demand, 1969-1970
    6 11
    Supply and Demand (Donor Shortage), 1970
    6 12
    Supply and Demand (Registries), 1970
    6 13
    Supply and Demand (Storage), 1970
    6 14
    Transplant Issues, 1986-1987
    6 15
    Transplant Rejections, Typing, and Matching, 1968-1970
    6 16-17
    Transplantation, 1968-1969, 1986-1987
    6 18
    Transplantation, American Council on, 1986-1987
    6 19
    Transplants, Government Policy, 1969
    6 20
    Transplants, Lay Interests, 1968-1969
    6 21
    Transplants, Legal, 1969
    6 22
    Transplants, Public Views and Criticism, 1968-1969
     
    Chlorpromazine and Psychopharmacology [subseries]:
    6 23-26
    Psychosurgery, 1966-1978
    7 1-2
    Prisons, 1966-1978
    7 3
    Thought and Behavior Control, 1967-1968
    7 4
    Correspondence, 1971-1974
    7 5
    Behavioral Modification - Correspondence and Memos, 1971-1978
    7 6-7
    Papers, Correspondence, Press Clippings, and Reprints, 1971-1975
    7 8
    Drugs/Behavior Control Conference, 1972 May 20
    7 9
    Copies from DiMasco's File, 1972-1974
    7 10
    Boston Case, 1973-1976
    7 11-12
    Research Proposal to NIMH, Psychosurgery Study, 1974
    7 13
    Total Institutions, 1974
    7 14
    Behavior Modification Drugs - Reprints, 1974-1975
    7 15
    Autonomy Papers, 1975
    7 16
    Chlorpromazine in Psychiatry - Promotion and Reviews, 1976
    7 17
    XYY Syndrome, 1976-1978
    7 18
    Hyperactivity Drugs [Jim Bosco Papers], 1978-1979
    7 19
    "Psychopharmacology Research and Social Controls: Lessons from the Boston Children's Drug Medication Study," Presentation at AERA Symposium, 1980
    7 20
    Hastings Center: Endorphins, 1980
    7 21
    Illustrations [photographs] [negatives], undated
     
    Laetrile and Quackery [subseries]:
    7 22
    Quacks Lecture, 1976
    7 23
    PC Seminar 9/15, 1977
    8 1
    Lay Articles, 1977-1978
    8 2
    Freedom of Choice Regulations, 1978
    8 3
    Reprints, 1979-1982
    8 4
    State to Consumer - 1980 Class Notes, 1980
    8 5
    Press Clippings, 1980
     
    Human Experimentation [subseries]:
    8 6-12
    Press Clippings, Reprints, and Reference Materials, 1973-1981
    9 1
    Society for Health and Human Values, 1979
    9 2
    Ethical Problems of Field Work, 1980
    9 3
    "Educational Needs for Participants in Research with Human Subjects" [Paper for the Office for Protection from Research Risks], 1980
     
    Primary Care Healthcare [subseries]:
    9 4
    Dan Clouser Papers, 1973
    9 5
    Ethics - Primary Care Book Prospectus, 1978
    9 6
    Professional Self-Regulation, 1981
    9 7-8
    Press Clippings and Reprints, 1973-1981
    9 9
    Backlash Articles, 1974-1975
    9 10
    Behavior Change Issues, 1976-1979
     
    Patient Record Access [subseries]:
    9 11
    Proposal for Patient Record Access Study, 1974-1976
    9 12
    Press Clippings and Reprints, 1979-1980
     
    Biomedical Research Innovation Opportunities [subseries]:
    9 13-14
    Persons Interviewed by Biomedical Group, 1966
    9 15
    Forecasting - Transplantation and Other Biomedical Fields, 1968-1969
     
    Series 2: Medical Sociology Research and Teaching Trip to the People's Republic of China, 1980-1984 [series]:
    9 16
    American Association for the Advancement of Science (AAAS) - China, 1980-1981
    9 17
    China Trip - General File, 1981
    9 18
    Research Trip to the People's Republic of China - Field Notes, 1981
    9 19
    Notes and Itineraries, 1981-1983
    9 20
    Lectures, 1981
    9 21
    Emmanuel College - China Lecture, 1981 Nov 11
    9 22
    Pre-trip Correspondence, 1981-1982
    9 23-24
    Post-Trip Correspondence, 1981-1984
    9 25
    Nursing - Grandmother Nurse and Nurse Doctor, 1982
    9 26
    "Critical Care at Tianjin's First Central Hospital and the Fourth Modernization" [article], 1982
    9 27
    Wang and Ming Visit, 1982
    9 28
    Hastings Center, 1982
    9 29
    Address List, 1982
    9 30
    "Medical Morality is Not Bioethics" [article], 1984
    9 31-32
    Why?, Why?, Why?: Teaching and Learning Medical Sociology in the People's Republic of China [manuscript], 1984
    10 1-3
    Reprints, Clippings, and Reference Materials, 1974-1984
    10 4
    China Book and Articles, 1981
    10 5-6
    Miscellaneous Documents [Correspondence, News Clippings, and Reprints], 1984
     
    Series 3: Medical Sociology and Ethics Teaching Materials, 1980-1984 [series]:
    10 7
    Privacy and Confidentiality Teaching Materials, 1980
    10 8
    Truth-Telling Class Materials, 1981
     
    Personhood Course [subseries]:
    10 9
    Personhood Course (Spring Semester), 1984
    10 10
    Session 1: Introduction [Personhood Course], 1984
    10 11
    Session 3: Personhood in American Social History [Personhood Course], 1984
    10 12
    Session 4: Cross-Cultural Perspectives [Personhood Course], 1984
    10 13
    Session 5: Abortion and Death [Personhood Course], 1984
    10 14
    Session 6: Genetic Engineering [Personhood Course], 1984
    10 15
    Session 7: Beginnings of Life [Personhood Course], 1984
    10 16
    Session 8: Behavior Change and Control [Personhood Course], 1984
    10 17
    Session 9: Social Justice and Classes of Persons [Personhood Course], 1984
    10 18
    Session 10: Retrospective [Personhood Course], 1984
    10 19
    Personhood Course Miscellaneous, 1984